VanSel1 Cycle 2 Day 15: Better out than in....

After a weekend of feeling vulnerable with frequent visits to the loo, Steve still felt rather agitated when we went to hospital this mornin...

VanSel1 Trial Cycle 2 Days 10-14

Another unpredictable week in terms of how Steve feels - at times he has been O.K, then the stomach cramps begin, or he has to rush to the l...

Early Access to Medicines Scheme and Medical Innovations (Saatchi) Bill

Two exciting developments of particular interest to people with mesothelioma and other life threatening conditions for which there is no cur...

VanSel Cycle 2 Days 8-9: a small milestone

A week into cycle 2 of the VanSel drug trial and we weren't sure whether Steve would be able to carry on.  He had not been feeling great...

VanSel clinical trial - Cycle 2 Week 1

One more dose of selumetanib tonight, and Steve will have completed the first week of cycle 2 in the VanSel drug trail. If I had to describe...

The Early Access to Medicines Scheme (EAMS)

Announcement from the UK's Medicines and Healthcare Products Regulatory Agency:  " The Early Access to Medicines Scheme (EAMS) aim...

VanSel 1 drug trial - Cycle 2 Day 1 : Good to go!

Just a brief update to let you know that Steve's ECG, bloods, other observations and physical examination this morning were good, so he...

VanSel Early Phase drug trial - Day 42 and the end of cycle 1

One more dose of selumetanib tonight and Steve will have completed the 42 day long first cycle of the VanSel 1 drug trial!   He's had si...

Intervals

We returned to hospital today after an interval of week without medication to see if Steve's heart rhythm had improved enough to allow h...

A roller coaster of a week in a small world

Having spent all of February getting used to a new routine based around twice weekly hospital visits and regulated eating and fasting times,...

Please support the Saatchi - Medical Innovation - Bill!

a birthday, a blip and another bereavement....

First of all, thank you for Steve's birthday cards, messages and good wishes.  It was a low key day, with phone calls from our children,...

"Life is short" : A bridge between mesothelioma and photography

Since Steve was diagnosed with mesothelioma in 2009,  my priority  has been to support him in whatever way I can, and in the process, raise ...